Brain Data Hub
9 October 2023
A Secured Data Platform to Share your Data for Research and Policy in accordance with European Law.
The European regulation on data governance (Data Governance Act – DGA) came into force on 24 September 2023. This regulation encourages the voluntary sharing of data for altruistic purposes, such as scientific research or improving public services, through data altruistic organisations.
In this context, the Belgian Brain Council (BBC), which brings together 26 patient associations and 28 scientific societies, is launching the creation of the first altruistic organisation for brain and mental health data. This organisation will be responsible for managing the Brain Data Hub, a secure IT platform for collecting and sharing data. The BBC aims to be an ethical and trusted intermediary for patients who wish to make their data for scientific research and the creation of a Belgian brain plan.
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